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Founded in 2013 by Kelly du Plessis, Rare Diseases South Africa is a non-profit organisation that has been successfully working to ensure that people living with a rare disease experience better recognition and support, improved health services, and a better life overall. Headquartered in Johannesburg, South Africa, Rare Diseases South Africa has grown tremendously over the last few years not only from an industry advocacy and patient perspective, but also from a staff perspective – where each staff members is committed to the improvement of the healthcare system in South Africa and eager to find solutions to better meet the needs, and ensure the care of South Africans, who are suffering with a rare condition.

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